FASD Ireland Statement on the Passing of Alli MacNamara

Everyone at FASD Ireland is deeply saddened to learn of the passing of Alli MacNamara from FASD Awareness NI/Oshay’s Brain Domain.

We extend our heartfelt condolences to her husband Brian, her children Reece and Jordan, her family, friends, and all those across Ireland whose lives Alli touched.

In 2022, when we announced our new contact number as our phone line was connected, Alli was our very first caller, not 30 minutes later.

Reflecting on their relationship, our CEO, Tristan Casson-Rennie, shared: “In the past six months I have worked very closely with Alli. We spoke on the phone many times since we launched in 2022, and our main theme was how we could work collaboratively to ensure families could be supported. Earlier this year I was absolutely delighted and honoured to be asked to speak at the very first conference organised by Alli in Lisburn, which was well attended, supported, and covered by the BBC. The conference is only one of the many legacies Alli leaves behind and she will be sorely missed by the FASD community across Ireland.”

Alli was a passionate advocate, a caring champion for families affected by Foetal Alcohol Spectrum Disorder, and a dedicated collaborator. Her warmth, kindness, and unwavering commitment to raising awareness and supporting those impacted by FASD will be greatly missed. During our joint work—especially at cross‑border events and training initiatives, Alli’s compassion, authenticity, and generosity shone brightly.

We mourn her loss together and stand in solidarity with the FASD Awareness NI/Oshay's Brain Domain community as they grieve. Alli’s legacy will live on through her tireless efforts to educate, empower, and support families navigating the challenges of FASD. May her memory continue to inspire us as we carry forward her vital work.

Rest in power, Alli.

Ar dheis Dé go raibh a hanam.

From your family at FASD Ireland.